This is a little more information about the custom project attached to the literature review, as discussed.
The conditions that were included in the research sample were congenital anomalies of the abdomen and/or airways (to speak generally) and include gastroschisis, congenital diaphragmatic hernia,
tracheoesophageal fistula and atreasia, anal atreasia,
and sacrococcygeal cyst
However maxilo-facial anomalies and neurological anomalies were exlcuded.
Some infants has co-morbidities of congenital heart and renal defects also.
These are all what is called "surgically correctable congential anomalies", however have been found to have some developmental deficits in childhood and also lowever quality of life in some adults who had these conditions as infants.
In general, there is more published research about
the psychosocial impact of congenital cardiac conditions, than these conditions, because most cardiac conditions (ie. HLHS) are mostly considered "palliative surgical conditions". There has been some writing about psychosocial aspects of anal atreasias also, however, as I have previously written, I have been unable to find published academic literature about the above specific conditions.
Please write approx. 5,000 words about the concept and practice of Family Centred Care (FCC) in NICU, and neonatology in general (paediatric surgery OK search term too). The main argument/question will be: does family centred care extend to post-discharge/at home care for families where their infant has had neonatal surgery?
There is a lot of good meta-syntheses about FCC that may be useful. Also some good articles about the history of the family in NICU - in other words, health professionals inviting families and working with families in NICU is a new modern concept, previously, concerns about infection and the fragility of the infants excluded families and parents. To some extent, this still occurs.
I hope you enjoy this piece of work.